Tory has a dream


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Learn how you can help fight rheumatoid arthritus!

An inspirational short story
Presented by Terry Lynch
Naturalist, Photographer, Journalist

"This site is produced in memory of Tory Tilford, a young girl with a big heart and dancing eyes who died in 1992. Tory is much missed by her family and friends. Although she suffered from from rheumatoid arthritis, she had a bright spirit and her eyes beamed with happiness from the joy and love which filled her heart. Although I knew her only briefly from afar, I saw in that glimpse a shooting star!"


Tory meets with Gov. George C. Wallace, March 1984
Tory meets with Governor George C. Wallace, March 1984

Tory Tilford was six years old when I met her. I only knew her very briefly but that brief encounter inspired this story which I would like to share. It is not really my story so much as it is Tory's story. But now that she is gone it is everyone's story, a reflection of a young girl's life and dream to be a cheerleader and how that came to be.

One of the first thoughts Tory related to me was that she liked Mexican pizza and her favorite color is red. She said she loves her two pet cats Lucy and Barny. That was some 18 years ago. Tory would be about 24 now. Only I learned just yesterday she passed from this world in 1992.

Tory also told me she enjoyed playing with her favorite friends Regina, Leah and Pia. She said that she studies hard in school and dreams of one day being a cheerleader. Her parents love and cherish her... I remember Tory's tiny voice coming over the telephone. She was enthusiastic, quite much so given the fact she suffered from juvenile rheumatoid arthritis which many people might have thought wouldn't help her become a cheerleader.

I originally wrote this story about Tory pecking away at my old Underwood typewriter. At the time computers in the home were not even unheard of. Now as I recall the glimpse I had into Tory's life I'm using a desktop system that I build for myself. I've written other such stories about celebrities who have touched my life and who are now pasted from this good Earth. Tory wasn't a celebrity. She was just a young girl with a dream to one day be a cheerleader.

Who was going to tell Tory that she couldn't be a cheerleader? Well, I for one believe in miracles and it wasn't going to be me! In fact, given the support of family and community I believed at the time their wasn't anything that Tory should not be able to accomplish. Indeed, Tory was already well on her way to becoming a cheerleader, not the pompon, rooting, tooting football fan rousing type, but a much more significant and important variety of cheerleader. Tory was the 1984 Arthritis Poster Child for the South Central Alabama Branch of the Arthritis Foundation. As Poster Child, Tory was working toward achieving her dream, a dream which fortune had brought in a different form, yet a dream realized none-the-less.

In late March of 1984 Tory met with Governor George C. Wallace and posed for poster child pictures. Her eyes sparkled and she smiled brightly as the cameras flashed. It was on this occasion that I met Tory and later that night over the telephone she told me about her dream to be a cheerleader. Tory's exact words in reply to my inquiry regarding what she wanted to do when grown were, "I'm working on a cheerleader." I think her phrasing was quite exact and to the point. For Troy was working right then to make her dream come true.

Tory's dream came one step closer when the Cloverdale High School cheerleaders made her an honorary cheerleader. This was during the Arthritis Foundation's Telethon on April 29, 1984, which was broadcast locally in Montgomery, Alabama, by WCOV Channel 20. At that time Tory was to meet with such local celebrities as WLWI's Rubarb Jones. Tory was to cheer the hearts of Alabamians and help the Arthritis Foundation's National Organization raise over a million dollars! Then thought the coming year Tory was to continue to serve as Poster Child, but equally important to her, she would be working to realize her cheerleader dream.

Presented to Tory Tilford Honorary Cloverdale Cheerleader April 19, 1984
Presented to Tory Tilford
Honorary Cloverdale Cheerleader
April 19, 1984

Unfortunately Tory was not able to appear at the Telethon. She had to be hospitalized and missed this presentation. But a wooden plaque in the shape of the Arthritis Foundation's logo had been made for Tory which read, "Presented to Tory Tilford Honorary Cloverdale Cheerleader April 19, 1984." It was a plaque made by Jim Harkins, a master carpenter who usually built furniture. Jim was my uncle and I had taken the liberty of going to Cloverdale High School and meeting with the cheerleaders to tell them about Tory's dream. They all enthusiastically agreed to make Tory an honorary cheerleader and presented the plaque during the Telethon. Tory's father and brother were there for the presentation and sometime later Tory was able to attend the Cloverdale cheerleader tryouts.

Thinking back of how much Tory did to help others who must struggle with arthritis, a disease afflicting 36 million American, many of whom are beautiful children like Tory, one wonders what caring adults can do to assist in the fight against arthritis? Many people can well afford to contribute money. Others can volunteer their time. Still others can lend their talents or energy in the fight to develop better treatments and therapy for arthritis. But most importantly we all can cheer along in memory of Tory and those like her, lending our support and encouragement to their dreams, no matter how futile those dreams might at first seem. There is nothing beyond reach and often it is the Torys of the world who in their innocence enable the most impossible dreams to be achieved.


Tory with her parents
Tory with her parents

TORY
A brief biographical sketch


Victoria Joy Tilford attended St. Bede school from first through eighth grades and had completed her freshman year at Catholic High School. Ten years of juvenile rheumatoid arthritis had affected her heart: she had a cardiac arrest and died suddenly July 1992. She was tiny, fragile, physically disabled and in constant pain, yet she could write:

But if they could see inside
What wonders they would find
For though my body's been taken apart
I have so much more in my heart.

I can dance
I can sing
I can do anything!

A happy, funny teenager, Tory loved God, her family, friends, pets, school, shopping, football and basketball games, boys, talking on the phone, ushering at the Shakespeare Festival, and most of all, working in kindergarten. People responded to Tory with the very best of themselves. Thanks to her teachers and her friends, who made imaginative and innovative accommodations for her, she was always included. Tory lived her brief life fully and with remarkable freedom.




The Lights
By Tory Tilford

If I could just turn out the lights
Then no one would be able to see
The way my body's been deformed
And the disease that has taken over me

So many people gawk and stare
And make fun of its hideous shape
Do they think I'm blind?
That I have no mind?
I can see their mouths agape.

But if they could see inside
What wonders they would find,
For though my body's been taken apart
I have much more in my heart.

I can dance
I can sing
I can do anything!

They see my body.
There goes my chance.
There goes singing.
There goes dance.

So maybe if the lights blew out
There would be no more labels
Like Crip or Stout

Maybe then
People would see
What a wonderful person
I can be.





Mask
By Tory Tilford

She looked out from behind her mask
The one with the dancing eyes
She looked out and saw her friends
And then--she cried.

She cried from behind the mask
So no one would see her pain.
She cried because no one knew.

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Copyright © 2002-2010 by Terry Lynch. All Rights Reserved. Acknowledgements: Original poetry by Tory Tilford and "A brief biographical sketch" were submitted and are used with permission by Grace Tilford. Family, friends or loved ones may contribute photographs or other material to update this memorial site and tribute. Please send items via email to webmaster.